At 35, columnist Alyssa Silva is making the transition from pediatric to adult healthcare — a daunting change given the ...
Evrysdi improved motor function and quality of life in children and adults with SMA, a real-world study in Hong Kong shows.
What do an unexpected job loss, a skunk, and a devastating diagnosis have in common? Columnist Helen Baldwin explains.
Electrical signals called far-field potentials may help track disease progression in SMA, a new study suggests.
Whole-body quantitative MRI, or qMRI, was found to detect subtle changes over time in the muscles of SMA adults, better than ...
Sleep problems, common in SMA, may involve both nighttime breathing issues linked to muscle weakness and brain changes, per a ...
Surgery to implant magnetically controlled growing rods is safe and effective for managing scoliosis in children with SMA ...
The depersonalization of medical devices can affect one's sense of identity, says columnist Sherry Toh, who argues for more ...
Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit Print Preferred Source on Google “Spinal muscular atrophy golf tournament,” I spoke into my ...
For whatever reason, society loves to infantilize disabled people. It’s practically a hobby for some people, be they medical professionals or middle-aged pedestrians looking to test their comedy ...
The Muscular Dystrophy Association‘s (MDA) annual Clinical & Scientific Conference kicked off over the weekend, bringing together patients, caregivers, researchers, clinicians, academics, advocates, ...
My younger brother, Kevan, and I were both diagnosed at a young age with SMA, so we grew up with power wheelchairs and powerful imaginations. We lived most of our childhood in our own pretend play ...
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